The commitment needed will depend on the particular study, but you can withdraw at any time, without this affecting your medical care. If you can let the study team know how you get on, it's very helpful.
And so apart from that, there weren’t any times when you thought, “I’ve had enough of this. I want to stop”?
No, no. Because by then I was beginning to understand that this is a project, and it’s designed to find out things that don’t work. When the things don’t work, stay there and get them straightened out. Don’t do a runner. You know what I mean? That’s, and of course that’s a, I’m, I was beginning to learn that, so that when I got a bit, all I did was I went back and told them.
After the dose of the drug was increased, Harry had some side effects. He felt that it was still important to him to stay in the study to find out why he was experiencing side effects.
And I don’t know if erm, sometimes people can’t take part in it because of time. And if they’re committed and they’re working and they’ve got a full-time job, erm to take time off is not easy. And I think it would be nice if all these trials are a bit flexible, in that erm that they try, I mean they do these kind of tests at weekends and evenings. Then there might be more people that would come forward, because during the day when people are working they’re committed and it’s difficult for them to take time off.
Sabiha talks about the time commitment involved when taking part in a medical study.